Just no two ways about it..

Living On Oxygen for Life

Correct me if I’m wrong but I think we all hate going to see the doctor. Especially, if we don’t feel so bad. Right? Friday is going to be the day that I make my quarterly appearance at the Pulmonologist office. Yippee! Not! I’m grumbling… I’m sorry. It’s just going to be a very long day and I’m already telling myself… I don’t want to go… I don’t want to go… I REALLY don’t want to go! *sigh*

Friday will start out at an unGodly hour. I’m thankfully NOT going to take my diuretic in the morning. So, that will be a bonus. However, not taking it for the morning will leave me feeling a bit like a water balloon. It’s a gamble.. I know. I’d rather not take it before the doctor appointment than get overly tired before I leave for the appointment and end up having a migraine all the way home. Clear across two towns. It can be a very uncomfortable ride for both K and me. Me, because I feel so bad. K, because I usually am throwing up all the way home. Yeah, in the car. YUCK! Too much information? Sorry! haha!

Ok. So, after arriving in town for this appointment, the first thing to accomplish is to get a CT Scan of my heart and lungs. I have a dilated ascending aorta that they’ve been keeping an eye on. It’s getting closer to the need for surgical intervention. Not cool. I try not to worry about that so much. The doctors tell me to not let my blood pressure get too high. I never thought it was high to begin with. (It’s not!) So, maybe they mean something else? Anyhoo, after the CT Scan, we have to get back in the car and drive to another building for the doctor appointment.

Then after the appointment, I get to do my least favorite thing. Oh wait.. that would be a blood gas draw and I’m not doing that hopefully ever again! I’m talking about the super-duper 6 minute walk! That’s right. For 6 whole minutes, I too will be in the Olympics this year. Just kidding. I do try to imagine something fun while I’m walking. Though, K walks with me up and down the hall dragging the bottled oxygen the hospital supplies me for while I’m there so I don’t run out of my own. K’s pretty entertaining to walk with. He matches my rate of walking and talks to me while I huff and puff. I’m not suppose to talk during the walk. It can skew the results.

When I started going to this pulmonary doctor in 2006, they had me start the 6-minute walk with no oxygen. That was not cool. They of course noticed that I needed oxygen. So they stopped me and put me on oxygen at a low level and kept checking the pulse oximeter monitor. They would adjust the oxygen as needed and make notes of my results each time I had to walk. I only have to do the 6-minute walk now every 4 to 8 months. I try to talk them out of making me do it though. I know.. I’m so bad. *wink*

I try to have a reward in mind for after the doctor appointment. It gives me something good to look forward to. Normally, it’s just lunch out with K or we’ll stop for ice cream. I love ice cream. Sometimes, K will just surprise me. Wish me luck!!

I hope you will FOLLOW my blog to learn more about Living On Oxygen for Life. Don’t forget about the NEED A HUG? giveaway. You can enter for your chance of a lapghan or afghan that I personally crochet. Please read the Need a Hug? post for instructions on how to enter.


4 thoughts on “Just no two ways about it..

  1. I hate those doctor appointments, too. This month I have SIX!. Originally it was 7, but my sleep apnea doctor got the flu & it was changed to February. So far I have seen my local pulmonologist, my endocrinologist & my GP.

    Next week I have to go up to Stanford for 3 days of appointments with the super specialists: a nephrologist (my kidneys are getting “sluggish”)–this will be the first visit, the cardiologist & of course, the PH specialists. On that day I will do the 6 min. marathon & have an echocardiogram. They are always long days up at Stanford, with lots of waiting around. I will be spending a week with my aunt, who always goes with me to those appointments. She only lives about 45 min. away, while I live 2+ hrs. away.

    But the good this about going to Stanford is that I have such excellent doctors. They have improved my quality of life. And I feel like they really care about ME!

    So buck up, Christine. You can do it. Just wear your lightest, most comfortable shoes for that 6 min. marathon.


    PS: I love your blog.

    • Ok, you set me straight… 🙂 You have so much to do over the next month. I’m glad you have your aunt to help you with your appointments. Good luck with your 6-minute walk. I definitely wear my lightest clothes for my PH doctor appointments. We so on the same page with the clothes! Haha. I am so happy you enjoy my blog! Thank you so much Trish!

  2. May I add your most comfortable clothes as well. Something you always feel good in. I prefer my favorite sweats and a baggie shirt. No matter how tired sick or sluggish I feel always always makes me feel a lil better.
    Wish you well my friend. 🙂

    • Oh how I wish I could wear sweats. But, alas, my man just doesn’t like them out of the house when he is with me. He says if I got dressed in everyday clothes and looked nice that I would feel better. In a way, he’s right because when I do look nice I seem to have more fun. People will smile or talk with me more. It makes me feel more myself and not more like the person who has breathing problems. Now, when I have a migraine… all bets are off. Everything comes to a screeching halt and the sweats are worn.. Thank you for your wishes! *hugs*

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