Living On Oxygen for Life
I’ve been keeping myself busy with my fun garden which I’m growing in pots near the back door of my house. I’ve added more herbs and I’ve attempted strawberries but I think only one strawberry plant has survived. My raspberries tastes awesome! I’ve not given up hope yet! The day is so beautiful outside. So, my windows and back door are open until it starts heating up to the point I can no longer stand the heat. I’m sure it won’t be long. After all, I live in Texas. But all that aside, I wanted to tell you that yesterday I went to a new doctor. He’s a cardiac electrophysiologist. I sure hope I got his title right! His title takes up the whole left side of his doctor coat with the MD and PhD added to it.
The big reason I chose to go to this new doctor was because of the current cardiac medicine that I’m taking and have been taking for the past 20+ years. It’s called Cordarone (or amiodarone HCl). This medicine is used specifically for ventricular arrhythmias. It also has a pretty bad side effect of possible Pulmonary Fibrosis. I have been very lucky to not have developed this so far… but my ability to breathe has been getting worse over the years and really, I don’t want to be taking a medicine that could potentially be harming my lungs. That is why I went to see this doctor. I wanted to know if there were any new medications out that I could take for my arrhythmia problem.
Luckily for me, there is a new medicine out and of course, wouldn’t you know it… it’s a “Specialty” drug called Tikosyn. Not only that, to be able to start taking this medicine, I will have to stop taking my Cordarone for two weeks and then be admitted to the hospital for three days. It’s the only way the doctors allow patients to start this medicine. It’s because the patient has to be connected to an EKG to be monitored to determine the correct dose and to make sure the person’s body will tolerate the medication. The patient information packet that I was sent home with to study was geared towards people who are diagnosed with Atrial Fibrillation/Atrial Flutter (AF/AFL). That confused me because I have what I’ve been told is called Ventricular Tachycardia. Once I figured out that Tikosyn is a general purpose Arrhythmias drug, it only made me feel a tiny bit more comfortable with the possibility of this drug. It’s all a little scary to me. I haven’t decided on if I will do it but I’m leaning towards it. K is letting me decide this but I think we are both playing this off as a possible mini-vacation for him. LOL! Don’t get me wrong! He will be worried about me. He’s a great man.
Right now, I’m trying not to think about it other than for this post on my blog. I just thought you’d like to know what’s going on. I’m also still on the new PH medication called Opsumit (macitentan). I am doing a lot better on this go around. I had taken this medicine for the first time only for a week when I must have developed a sinus infection and had to stop the medicine for a whole week. I’m now restarted on Opsumit and am on the 5th day with no serious sinus problems and only a twinge of a bad headache occasionally. I think I will be okay on this stuff. If it helps my aorta artery and my breathing ability, then it will be worth it. Plus, there is the bonus of only needing to get lab work done once every three months now. That rocks!
I’m so looking forward to heading to Oklahoma to see my family. That means if I decide to try Tikosyn, it won’t be until sometime in June, after having all the fun I can have with my family. Besides, I don’t want to be off Cordarone while away from home and away from my doctors. To me, that’s risking a little too much. I’ll play it safe!
Don’t forget to follow my blog so you won’t miss anything! I haven’t forgotten the “Need a Hug” giveaway! I’m making the afghan and it will be finished very soon! I will get a preview picture up soon. Here are the pictures I took of my garden this morning. What do you think?