A Long Awaited Update! September/October 2017

Living On Oxygen for Life

Let’s be honest… I’ve missed blogging and I know it’s been since before my birthday (last month) that I’ve posted anything on my blog for you to read. In my defense, the last two months have been incredibly… what’s the word I’m looking for?… trying?…no. Hectic? You could say that. Let’s throw in challenging with a bit of a MacGyver twist and super stressful at times. If you wrap all that up and include my two road trips that I took (one to Oklahoma to see my family & one to South Padre Island for my birthday/25th anniversary), I have to admit, it’s been a pretty awesome adventure.

It all started with my birthday/anniversary vacation that we try to take every year. We both took turns driving down to South Padre Island which took us about 9 hours even while having to stop nearing every two hours (when K was driving) to get out and stretch our legs and walk the dog. Rocco loved sniffing new territory but I hated having to use convenient store or McDonald’s bathrooms. Not just because I never knew what to expect going into one of those things but also because getting in and out of the car and walking to the bathroom now wears me out and makes me short of breath in the worst way. That’s something new.


We made it to Padre and it was overcast but that’s ok because we knew Hurricane Harvey just past by and almost everything was up and running again on the island. Yay for us! Two days after we arrived, a boat washed up on the beach which drew everyone, including the Padre Beach police, to check the boat out. We should have set up a beach chair next to it and charged people for us to take their picture! It took nearly a week for the boat to wash up this far on the beach.


K and I normally go for a nice steak dinner for our anniversary celebration. But who knew that there wasn’t a restaurant on the island, nor close by on the mainland, that sells a good steak? Instead, we had a small party of two at our condo with a gigantic birthday/anniversary cake that K intended to share with the waitstaff had we gone to a restaurant. Thankfully we brought our big ice chest and I had some square foil pans to save the leftover cake to freeze and take home. You better believe that I ate it all once I got home (K had the last piece..darn him!). I LOVE birthday cake!

We really had a lot of fun and took a few goofy pictures. I was even a pirate! Argh! After ten days in Padre, it was time to go home and on the way home, the craziness began. We were north of Austin, Texas when it happened. I was reading and K was driving… thankfully. Our grill from the front of our van broke loose and flew over the hood and smacked our windshield and then continued over the top of the van. It scared us so bad. Thankfully, no one was behind us and we looked but didn’t see it land on the highway. We get home ok and called our mechanic to see what it would cost to get it replaced. $600! Are you kidding me? The thing was made mostly of plastic. K and I had the same idea… look on eBay for the part. K said he could fix it himself and I was, like, “You go Rambo…you get into that MacGyver mode!” Sure enough, it cost us a total of $200 and K attached it with no problems! YAY K!

What K didn’t tell me was that on the way home from Padre was that he was starting to see floaters in his right eye. Then when he went to work, he called his optometrist and they told him to come in RIGHT NOW. He had a detached retina. I was so worried because now he had to have surgery and this was his eyesight!. The first time I went with K to his optometrist, K told me that he had been telling the doctor about me because he has a daughter who has some similar health conditions. Let me tell you that I have no problem that K talked about me. I mean, I blog… so of course I don’t mind. I was really excited about meeting this doctor to learn more if he wanted to talk about it. Naturally, I knew this appointment was about K but I did bring a printed copy of an x-ray showing my scoliosis. This doctor was really neat and very personable. K and I really like him. But what excited me the most was his waiting room. Holy cow… the moment I walked into the building, I was thinking that EVERY waiting room should be like this one. There were crocheted afghans on a blanket rack next to the door and in each waiting area there was a card table with a puzzle to be put together. I immediately zoned in on the puzzle. K knows. I love puzzles and there was an older man sitting there working on the one I noticed. I just blurted out … “Oh yay a puzzle!!!” (I know you’re visualizing that.. aren’t you? haha!) The man heard me and started to get up saying that I could work on it. I told him to please stay and I can work on it with you. I told him that I love puzzles and this reminds me of when I worked on puzzles with my dad. Awww! I know, right? I was so engrossed that I didn’t even hear K’s name called by the nurse. What’s so awesome was that there was ANOTHER puzzle in the waiting room in the back! I was in waiting-room heaven!

K’s surgery went well but I wore myself out having to drive him to appointments and waking up to check to see if he wasn’t sleeping on his back for the first week after surgery. That was stressful but after the first week, he could sleep on his side but NOT on his back. You would think that it wouldn’t be a big deal but people move around while they sleep and K is accustomed to sleeping on his back. So, I had a lot of waking up to do to check on him. With everything that was going on with K, I truly had an eye opening experience about how much he does for me without complaining. He drives me to doctor appointments that are an hour away, he pushes me in a wheelchair when I need it, he takes care of everything in the background when I have migraines, not to mention doing most of the chores and all of the grocery shopping now…and most of this is done without me having to ask. I got a taste of what he does for me when I needed to take care of him for a change. I was definitely humbled and I gained a new appreciation for what he does for me. Not that I never appreciated it but my health is changing faster now, requiring K to do more and I don’t always see what he does for me.

Lots of love to you all! Don’t forget to subscribe to my blog to follow along! Leave a comment too! Have a great day!!!

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A little thing about shopping carts.

Living On Oxygen for Life

A tragic accident happened yesterday. *sniff* *gulp* I was hot-footing after K in Lowe’s last night, reminding him to please slow down. You see, even after all this time together with each other, he will sometimes forget that I’m slower than he is. “What?!?” You ask. I know, I know. I’m stunned by that revelation myself but it’s true.

K “needed” more garden supplies. I swear for a man who originally didn’t want a yard when we were house shopping years ago, he sure has taken up gardening as if it’s a lifeline. Honestly, it can be and has been. Even though it’s a lot of work, there’s a lot of joy and even a bit of escapism to it. He’s made our yard it our little project that is never finished and that’s ok because we love every change we bring to it each year.

Now, back to Lowe’s. Right. Where was I? Ok I remember. “Slow down,” and he turns around to look back at me while turning the cart filled with bags of dirt. “K, I’m not made for this speed anymore.” I smiled at him and that’s when my life goes into slow motion. I see K about to say something and then I caught something flying out of the corner of my eye.

Have you ever experienced something happening that you knew wasn’t right but you weren’t in the position to stop it from happening? Well, that was K and I. I was too far away and K was still looking at me when the dirt shifted in the cart that he was still pushing around a corner. There wasn’t a darn thing we could do. My portable liquid oxygen tank got squeezed out of the cart’s seat and flew out and smacked the concrete floor. The plastic casing came wide open and top was tilted out way wrong. Oh crude buckets! I gently picked it up, trying to squeeze it back together, when my mind was wondering if these things blowup. Apparently not this time. However, K’s first thought was, “Is it still flowing oxygen?” Isn’t he so sweet???

Miraculously, the darn thing was still working but I asked him what her would do if it didn’t. He said, “We’d figure it out. We always do.” What a guy, right? It wasn’t until we got back to home that we tossed around some ideas of what to do in that scenario. It’s always good to have a plan in place for such things because I can not be without oxygen for very long before I start to suffer badly and that’s if I’m just sitting somewhere without talking or moving to conserve my body’s oxygen supply.

When we got home we discussed what we could have done if my portable had stopped working. I’m a little nervous to tell my oxygen provider that my portable is broken. But hey, these things happen, right? A lesson has been learned here for us. We will never forget to strap in my portable tank using the child safety belt in the shopping cart. I mean, we took the time to connect it through my purse strap but didn’t do it this time for my portable.

Staying Active…

Living On Oxygen for Life

I AM SO EXCITED!!! K built me a second raised garden bed so that I can plant even MORE vegetables this year. He knows that my energy is waning but he is wanting me to keep active so that my lung function stays stable. Plus, staying active makes me happy even though it takes a lot more energy. So, this year, K has committed to helping me with my garden whereas, last year, he told me it would be my responsibility to take care of it.

Here’s some of my gardens:

I planted 8 seed potatoes this year.

Carrots, Broccoli, & Herb garden.

I know what he’s doing and I appreciate it very much. He’s getting more involved in hopes that I will be encouraged to keep moving which has declined over the last 6 months. In fact, we even went out clothes shopping for me last week. I normally hate shopping but I hadn’t had any substantial new clothes in years. I’m someone who will wear what I own for years before I become willing to shop for new stuff. Shopping makes me tired and again, K was so instrumental in helping me make shopping for clothes really fun. He helped me pick out clothes (because he’s SO good at! haha!), came in the dressing room and helped me get clothes on and off if I needed it, went out for exchanges for different sizes, told me to rest when he saw I was getting tired, AND told me, as I was showing off each piece of clothing, how much he liked it or asked me if I liked it or will I be comfortable in it. You see, I have scoliosis and clothes don’t always fit right. It can discourage me a lot when I go out clothes shopping. So having K there in the dressing room giving his opinion was SO helpful. He’s never gone into the dressing room with me before. So, yeah, he’s noticing and really trying to make a difference in my life and our happiness.

Today, I have February’s Need a Hug afghan being mailed out to a sweet lady, Linda. I’m still working on March’s afghan. It’s about half done. I hope I can finish it by the end of this month. I hope everyone is doing well. Much love to you all! *HUGS*

P.S. I just told K that I need a new Rubber Chicken. *sniff* Klondike’s (my current chicken) finally broke his neck *cringe*. It’s so sad because he’s been on some amazing adventures! When I get a new one, I will need help with naming him (or her). I’ve never had a girl rubber chicken before! Yes, I know I’m a bit strange about these chickens but they are our Road Trip Mascots. They go on our vacations with us for good luck. *sigh* So far, over the last 29 years, we’ve had Poke, Poke Jr., Mr. Chicken, & Klondike as our mascots. It really is a fun thing to do. haha! Like I’ve always said, finding something fun to distract me from my health, no matter how silly it can seem, is how I deal with life.

Learn about your oxygen concentrator filter

Living On Oxygen for Life

Good morning everyone! Whoops it already noon but it feels like morning to me because I woke up for the day about 30 minutes ago. I was so absorbed in a good book that I didn’t realize that it was already 3:30am when I looked at the time. I even had to struggle to put the book down. It was so good!

This blog entry will be short… Sorry.. Sorry! I know you love my long.. really long blog posts but at least this one has a video! YAY! In this video, on Youtube.com, I talk and show you an oxygen concentrator filter. Bare in mind that my filter may not be exactly like the one that is inside of your concentrator. But that’s ok.. they work the same way. You can watch it and then tell me what you think. Ok?

 

I hope everyone is doing well today. Don’t forget to stay active by finding something exciting and new to try. Like a hobby! I’m about to go outside to look at my elevated raised garden to see how much my veggies have grown already. I have pictures and I can’t wait to show you in my next post.

[April 2015]

It was a longer than expected stretch…

Living On Oxygen for Life

When K got home from work last Saturday, it was earlier than I had expected. Sometimes that happens and it’s always a joy to see him home. I was about to take a quick power nap but there he was standing in the kitchen when he asked me…”What are your plans for the rest of the day?” Now, I know from previous experience when he has asked that question, he generally has something up his sleeve already. So, this time I just I played it real cool by asking him, “Whatcha got in mind?” Trust me.. K always has something in mind when he asks. So, why spoil the surprise by telling him I was about to lie down for a nap? Right? Are you with me?

You see, for the past 3 weeks, I’ve been having trouble breathing. Ok… I know, that you know, that I have breathing problems all the time but, this time, over the past 3 weeks, it’s been a bit worse than usual. It’s like I can’t even bend down to the floor a pick something up without getting short of breath. crap… really? Yeah, really. K has noticed that I haven’t gotten out of the house much at all by myself lately. So, that’s why he asked me what I had planned. He was getting my butt out of the house. haha!

What’s the one thing, you ask, that will motivate me to get out of the house? Shopping for yarn? Well, that is true but it’s not something that K would willingly take me to do. *wink* Nope, he wanted to take me to see the new Transformer movie. The one that has Mark Wahlberg. When we looked up this movie, the first thing that we noticed was how long it was. . It was 2 hours and 45 minutes. yikes….that’s long!

I was thinking.. This is going to be tricky. The calculating begins! Will I have enough oxygen in my portable liquid oxygen tank to walk from the parking lot, into the mall movie theater, watch the movie and then return to my van? Now, we like having decent seats. So, we wanted to get there a little early. K was over in the driver seat saying..”You’ll be fine. You’ll have enough.” I gave him a very skeptical look. He said, “You can turn it down when you sit in the movie, right?” I was wearing my oxygen on 6 Liter/min nowadays. I was already going to have to turn it down to 5L/min just to walk to and from the theater.

We actually did get pretty good seats. We thought it was going to be a little fuller. The movie start time comes and then it goes but finally started about 10 minutes later. What we didn’t know was that they had tacked on 20 minutes of commercials and movie trailers to the beginning of the movie. It was a long wait for the movie to start and it was a lot of time that we didn’t factor into my oxygen consumption needs. So, I turned my oxygen down again to 4 L/min. Now, I know I can do this as long as I remain seated and do not talk. Otherwise, I would need more oxygen.

By the time we thought the movie was about to wrap it up, I pick up my portable to see how much juice was left and I nearly panicked because it was so light. K asked me if I wanted to leave early. I thought, “Surely it can’t last much longer, right?” So, we decided to stay.

The very second the movie was over we bolted out of our seats. I had to grab K’s belt because I got woozy. He must have said something to the people sitting in our way to get to the aisle because they quickly moved out of our path. I was like… I’m so sorry! I hate mowing people over when they’re not ready to leave the theater. Usually, that’s us. We like to read the credits.

We made it just in time to my van before my oxygen ran out. Thankfully, I have a big backup reservoir of liquid oxygen in my van. I don’t think we are going to try that again with such a long movie and only one portable oxygen tank. That was a little too adventurous!

I hope you have a great adventure!!! *hugs*

Out of town…

I’m sorry to not be posting much. I’m out of town visiting family. There is something wonderful that I’d like to share with you when I get back home. So stay tune! I’ll post next week. Hope you enjoy your weekend!

Staying busy…

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Living On Oxygen for Life

This year I have been staying busy. I found a way to do volunteer work while staying at home. Since I am on oxygen 24/7, it’s wonderful that I could actually find something that I can do. I crochet hats and afghans for a local children’s hospital. The picture above is the start of my 5th afghan that I plan to donate when it’s finished. I taught myself how to crochet years ago and it’s something I do that is so relaxing. I just love it!

I’ve always wanted to volunteer. During one time in the hospital when I was a child, I received a little pillow made by volunteers from a ladies’ church group. I still have the pillow. I think I was 13 years old when I got it. I’m now 43 years old. So, the pillow is pretty old! It’s been through a LOT with me. How could I ever get rid of it? Right?

I love giving and to give a child something that I’ve made just for them makes me so happy.