A Long Awaited Update! September/October 2017

Living On Oxygen for Life

Let’s be honest… I’ve missed blogging and I know it’s been since before my birthday (last month) that I’ve posted anything on my blog for you to read. In my defense, the last two months have been incredibly… what’s the word I’m looking for?… trying?…no. Hectic? You could say that. Let’s throw in challenging with a bit of a MacGyver twist and super stressful at times. If you wrap all that up and include my two road trips that I took (one to Oklahoma to see my family & one to South Padre Island for my birthday/25th anniversary), I have to admit, it’s been a pretty awesome adventure.

It all started with my birthday/anniversary vacation that we try to take every year. We both took turns driving down to South Padre Island which took us about 9 hours even while having to stop nearing every two hours (when K was driving) to get out and stretch our legs and walk the dog. Rocco loved sniffing new territory but I hated having to use convenient store or McDonald’s bathrooms. Not just because I never knew what to expect going into one of those things but also because getting in and out of the car and walking to the bathroom now wears me out and makes me short of breath in the worst way. That’s something new.


We made it to Padre and it was overcast but that’s ok because we knew Hurricane Harvey just past by and almost everything was up and running again on the island. Yay for us! Two days after we arrived, a boat washed up on the beach which drew everyone, including the Padre Beach police, to check the boat out. We should have set up a beach chair next to it and charged people for us to take their picture! It took nearly a week for the boat to wash up this far on the beach.


K and I normally go for a nice steak dinner for our anniversary celebration. But who knew that there wasn’t a restaurant on the island, nor close by on the mainland, that sells a good steak? Instead, we had a small party of two at our condo with a gigantic birthday/anniversary cake that K intended to share with the waitstaff had we gone to a restaurant. Thankfully we brought our big ice chest and I had some square foil pans to save the leftover cake to freeze and take home. You better believe that I ate it all once I got home (K had the last piece..darn him!). I LOVE birthday cake!

We really had a lot of fun and took a few goofy pictures. I was even a pirate! Argh! After ten days in Padre, it was time to go home and on the way home, the craziness began. We were north of Austin, Texas when it happened. I was reading and K was driving… thankfully. Our grill from the front of our van broke loose and flew over the hood and smacked our windshield and then continued over the top of the van. It scared us so bad. Thankfully, no one was behind us and we looked but didn’t see it land on the highway. We get home ok and called our mechanic to see what it would cost to get it replaced. $600! Are you kidding me? The thing was made mostly of plastic. K and I had the same idea… look on eBay for the part. K said he could fix it himself and I was, like, “You go Rambo…you get into that MacGyver mode!” Sure enough, it cost us a total of $200 and K attached it with no problems! YAY K!

What K didn’t tell me was that on the way home from Padre was that he was starting to see floaters in his right eye. Then when he went to work, he called his optometrist and they told him to come in RIGHT NOW. He had a detached retina. I was so worried because now he had to have surgery and this was his eyesight!. The first time I went with K to his optometrist, K told me that he had been telling the doctor about me because he has a daughter who has some similar health conditions. Let me tell you that I have no problem that K talked about me. I mean, I blog… so of course I don’t mind. I was really excited about meeting this doctor to learn more if he wanted to talk about it. Naturally, I knew this appointment was about K but I did bring a printed copy of an x-ray showing my scoliosis. This doctor was really neat and very personable. K and I really like him. But what excited me the most was his waiting room. Holy cow… the moment I walked into the building, I was thinking that EVERY waiting room should be like this one. There were crocheted afghans on a blanket rack next to the door and in each waiting area there was a card table with a puzzle to be put together. I immediately zoned in on the puzzle. K knows. I love puzzles and there was an older man sitting there working on the one I noticed. I just blurted out … “Oh yay a puzzle!!!” (I know you’re visualizing that.. aren’t you? haha!) The man heard me and started to get up saying that I could work on it. I told him to please stay and I can work on it with you. I told him that I love puzzles and this reminds me of when I worked on puzzles with my dad. Awww! I know, right? I was so engrossed that I didn’t even hear K’s name called by the nurse. What’s so awesome was that there was ANOTHER puzzle in the waiting room in the back! I was in waiting-room heaven!

K’s surgery went well but I wore myself out having to drive him to appointments and waking up to check to see if he wasn’t sleeping on his back for the first week after surgery. That was stressful but after the first week, he could sleep on his side but NOT on his back. You would think that it wouldn’t be a big deal but people move around while they sleep and K is accustomed to sleeping on his back. So, I had a lot of waking up to do to check on him. With everything that was going on with K, I truly had an eye opening experience about how much he does for me without complaining. He drives me to doctor appointments that are an hour away, he pushes me in a wheelchair when I need it, he takes care of everything in the background when I have migraines, not to mention doing most of the chores and all of the grocery shopping now…and most of this is done without me having to ask. I got a taste of what he does for me when I needed to take care of him for a change. I was definitely humbled and I gained a new appreciation for what he does for me. Not that I never appreciated it but my health is changing faster now, requiring K to do more and I don’t always see what he does for me.

Lots of love to you all! Don’t forget to subscribe to my blog to follow along! Leave a comment too! Have a great day!!!

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Crazy Awesome Weekend with Family!

Living On Oxygen for Life

I had a very long but fun weekend. First was the Pulmonary Hypertension doctor appointment and an Arterial Blood Gas drawn. Then we ate lunch at McDonald’s because we had other things we needed to do. We had to run to Walmart to return some stuff and pick up some forgotten thing from the grocery trip K did the previous day. Plus we picked up a new inhaler at the pharmacy. That was all on Friday.

When we came home from the errands, we got busy finishing up with cleaning the house because family was coming!!!! Yay!

After I made it to bed feeling exhausted, I knew I had to get up way early again for another appointment on Saturday that was a little over an hours drive away.

While we were at the appointment, my sister & her family already arrived at our house (we call it The Chateau), and we finally got home around 2pm. Yay! 

We got to babysit my niece for 4 hours, which was super fun but by the time they got back, K and I were wiped out.  My niece must have some sort of super-charged mega-battery that keeps her pumped up with energy.  I asked to borrow it but I didn’t think it’s transferable. Darn! 

We had so much fun but I’m glad we didn’t go to lunch with them today. It’s time for this girl to crash. I need sleep or at least down time. My niece is 7 and she asked me lots of questions (even taught me a two person hand-slapping song that was called Lemonade. I think?!) about my bipap mask that I was using when she snuck in my room to see if I was awake yet yesterday during my very short nap. She wanted her own cannula. She also wanted to see what it felt like with it connected to the oxygen. 

So, like a fun Auntie that I am, I used it as a learning experience for her. I got her a 7 foot cannula (like the ones used with portable tanks), connected it to one of my oxygen tanks, and I turned the oxygen on to 2 liters first. She wasn’t really impressed. So I told her, “Ok, now this is was it feels like at the amount that I have to use which 6 liters.” Her eyes got really wide when she felt it in her nose and she said, “Whoa! How do you do that?” “Baby girl, I do it because it helps me breathe.” 

I always want to make sure that she knows it’s ok to ask questions about me or my equipment. Curiosity can be a good thing when paired with learning about something that will expand her mind. We had a great time this weekend and I feel happy as I always do when I get to see one or both of my sisters. It’s like medicine to my soul. Sounds a little corny but it works for me. 

A Darn Good Day!

Living On Oxygen for Life

I had a GREAT day yesterday. Even I couldn’t believe what all I got accomplished on my own. I made it to the pharmacy and then decided, what the heck, I still have energy… I’ll go grocery shopping all by myself. I did find myself huffing and puffing my way into the store but I grabbed a cart and rolled it the short distance to the produce department while doing a little purse-breathing along the way. (Remember? K has been taking over the grocery shopping for the last 5 or 6 months. It’s been getting harder and harder for me to go along.)

I did a bit of “slow browsing” to give myself enough time to catch my breath and then away I go to shop to my heart’s content. No, I did not buy ice cream. But I did by ingredients to make cookies and maybe even turtle cheesecake. *drool* I even had fun saying hello to people I don’t even know, even the little kids. I had so much fun!!!

I knew I’d be tired when I got home because K wasn’t going to be home yet and I skipped my morning diuretics to get an early start on my day. So I grabbed a roasted chicken for dinner. Won’t K be surprised?!?!

I got home with my groceries and unloaded AND put them away! All. By. Myself!!! *super proud of myself* Next, I started dinner! Whaaaat??? How am I even doing all this??? I just don’t know. All I can say is….K sure was surprised because not only did I accomplished all the stuff I did yesterday, I even made a salad to go with dinner! Whaaaaaat? I think I scored some extra points with the salad. *grin* Who says men don’t like salad? After dinner, my energy was definitely draining. I could only rinse off the dishes but you KNOW I had just enough energy to sit down to crochet for a few hours while we watched some TV together.

It was a happy day yesterday and I hope I have another one again soon. I am paying for all of yesterday’s effort today. I’m tired, tired, tired today and when I told K that I was ready for a nap earlier, he politely reminded me that the Cowboys play at 3pm which is about 25 minutes ago. Argh!!!! haha! So, here I am with my bipap on, in bed, trying to power up for the game.

I’m happy. I hope I don’t mess up whatever I decide to make for my contribution to our family Thanksgiving dinner. It’s supposed to be something chocolate-flavored. That’s where the turtle cheesecake comes into play. *shrug* hehe!

Have a great Sunday! Lots of love to you all!!!

Springtime brings the good and the bad…

Living On Oxygen for Life

Spring is coming!!! Ok… Here in Texas, it feels like Summer will be here soon. It’s already touched 80 degrees. So, that has encouraged me to string my 50ft cannula out the back door to watch K construct my newest raised garden for planting vegetables. He asked me how big I wanted it to be and I told him at least 8 feet long. He replied, how about 6 feet long and 2 feet wide? And then we began the negotiations for the height. I accomplished 16 inches in height which means we both were happy in the end. He was afraid if he made it bigger, it would tire me too much. He said he’d build another one if I wanted later. We just want to see how I do with this add-on garden. Don’t forget… I still have my 4ft elevated bed from last year that I’m using again.

This is a great way that K and I keep myself moving and motivated. There’s nothing like watching something grow into a plant you can eat!! Remember my 3 lemons? I made some awesome lemonade?

I made lemonade from the lemons I grew!

I made lemonade from the lemons I grew!

Lately, I’ve discovered myself in a battle with a nocturnal cat. The stinker likes digging in my gardens and darn near killed my basil. Well, I’ll show it who’s boss! I went to Walmart a bought a whole bolt of toile netting and then off to Home Depot with K to but some PVC tubing. I feel a MacGyver Moment coming on. I created a dome netting to cover each garden!

My 2016 garden adventure!

My 2016 garden adventure!

In the upper left corner of the above picture shows a bunch of orange blossoms on my dwarf orange tree K bought me about a month ago. Even my lemon tree is budding flowers again. Yay!

Ok now the not-so-great news. With the warming weather, it brings along pollen and other breathing irritants such as what seems like more air pollution. With warm weather, my body starts to retain water causing swelling and difficulty breathing which means I have to move a little slower. Well, ok, a lot slower. Right now, I’m starting my practice of getting my body ready for our Texas summer heat. I go outside on warm days for short periods of time and then go back inside to rest. I only go out in short bursts and gradually increase my tire outside allowing my body time to adjust.

My first Homemade fresh fruit Popsicles that I made. Raspberry (sieved to make seedless), mango, lemon.

My first Homemade fresh fruit Popsicles that I made. Raspberry (sieved to make seedless), mango, lemon.

For a while I’ve wanted Popsicle molds. I finally found some cute one and tried my hand at making my very first fresh fruit Popsicles. Getting the seeds out of the raspberries with my sieve was super slow going. That was a lot of work. I hope they taste good. I made them a few days ago. I’m going to try them tonight. K and I are trying to eat fresher food. We no longer eat canned vegetables. Food tastes so much better fresh.

I have exciting news coming up in my next post. I thought I’d catch you up with what’s going on in my life. I hope you are doing and breathing well.

I’m still taking questions for my Q & A video that I’m going to make and post on my blog. If you have a question about me, oxygen, Bipap/Cpap, living with oxygen, Klondike (my rubber chicken) and his adventures, or even Rocco, you should email me your questions at goredrider@gmail.com I’ll try to answer your question in my video.

I’ve had enough of July…

Living On Oxygen for Life

thehalfmoonJuly2015

Lately, I have become a bit lazy and now I’m paying for it. It’s not really a laziness by choice. It’s one of those laziness that creeps up on you because you haven’t felt well enough to be motivated to do much. It’s a struggle for me at times. Right now… I’m trying to deal with this malady as best as I can.

It’s gotten to the point where I stopped calling friends & family or leave the house much for anything besides doctor appointments and grocery shopping with K. That, in itself, is bad. I need to push myself to do things because I don’t feel the energy to do them. I’m talking about making dinner, processing laundry (i.e.: changing loads, folding or hanging up shirts), and swiffing the wood floors. All of this seems really easy to do, right? It looks easy to me. It’s just that when I have a monumental Migraine *knock on wood* everything comes to a standstill. K picks up the slack and keeps things going. Unfortunately, this time, I didn’t rebound as well as I normally do.

Maybe it’s the Texas heat or maybe my breathing is actually getting worse. In fact, K actually picked up the laundry basket full of clothes, as he was making himself a sandwich for lunch, and placed it on the counter. I wasn’t sure why he did that. So I asked him and he told me he did it so I wouldn’t have to bend over and pick it up. He knows how bending over affects my breathing now. Sure, he could’ve carried it all the way to the bedroom but he doesn’t want to make it THAT easy for me. I need to keep active or my health will decline.

I’ve started writing a TO-DO List to get me going again. So far, I’ve accomplished one thing on it which is tonight’s dinner. YAY! I have been crocheting a lot and I’m getting ready to send out another Need a Hug afghan. Just please give me a few more days to get myself back into the swing of things. I’ll be posting more often again. This month has been so weird. It’s definitely NOT normal for me to be so quiet. So, I’m sorry for that. I’ve had enough of July’s laziness and I’m ready to come out swinging in August! Watch out! haha! *HUGS* to you all!!!

The above picture is one that I took a few days ago. The moon was low enough in the sky to take a pretty good shot at it. I love taking pictures! It only took about 15 tries to get one this clear because I didn’t use a tripod. I didn’t want to lug it outside. haha! Space intrigues me! I loved the pictures of Pluto! That was AWESOME!

[2015]

Learn about your oxygen concentrator filter

Living On Oxygen for Life

Good morning everyone! Whoops it already noon but it feels like morning to me because I woke up for the day about 30 minutes ago. I was so absorbed in a good book that I didn’t realize that it was already 3:30am when I looked at the time. I even had to struggle to put the book down. It was so good!

This blog entry will be short… Sorry.. Sorry! I know you love my long.. really long blog posts but at least this one has a video! YAY! In this video, on Youtube.com, I talk and show you an oxygen concentrator filter. Bare in mind that my filter may not be exactly like the one that is inside of your concentrator. But that’s ok.. they work the same way. You can watch it and then tell me what you think. Ok?

 

I hope everyone is doing well today. Don’t forget to stay active by finding something exciting and new to try. Like a hobby! I’m about to go outside to look at my elevated raised garden to see how much my veggies have grown already. I have pictures and I can’t wait to show you in my next post.

[April 2015]

Random Picture Day #13

Living On Oxygen for Life

Hello everyone! Wow… time sure does fly quickly. Doesn’t it? Well, I guess it seems kind of slow if you are snowed under. I hope you have sunshine by now. It’s starting to peek out more and more here in Texas. It is amazing how much a little bit of sunshine can change a person’s mood… from rainy-gloomy-cabin-fever blues to rip-the-doors-off-the-house-and-let-me-at-the-glorious-sunshine happiness. This Winter has been a heck of a roller coaster. So, I guess Spring has sprung and all that sweet sunshine has brought our daffodils up and blooming. That is until someone came by and cut and stole them from our front lawn. K was crushed. All that work and now it’s like he has nothing to show for it. The thing is.. he told me that he would have been happy to give them to whomever wanted a few if he’d just ask for them. K would have felt like someone sweet, other than me… of course *wink*, was going to enjoy them and appreciate his effort. But no… someone stole them. I’m a little worried about the tulips that are starting to come up. As you know, daffodils and tulips, make their appearance once a year in the Spring and they are beautiful. Majestic, really, which makes our next outing plans super exciting. It’s a wheelchair adventure with my new camera I got for Christmas! Thank you Santa!

We are going to a place that is GLORIOUSLY filled with tulips, daffodils, and so many more types of flowers. The last time we went to appreciate the flowers was about 5 years ago. Here’s two pictures that I took there.

tulips

cottage

Taking pictures with my Nikon dslr 5200 camera is something I LOVE doing. It’s something that is easy to do while having to use oxygen. It doesn’t take a lot of energy unless I am having to move about a room like at a wedding reception. I like taking candid, spontaneous pictures of people in the moment instead of posed people in a group picture. But nature, by far, is my favorite to photograph. K has really developed an eye for photography. Sometimes my hands are too shaky because I get tired or my oxygen saturation drops and that gets me frustrated because pictures can blur. So, K will drag the tripod around with us if I end up needing it, we’ll have it handy.

So, what am I really like? You read my blog. Do you wonder… what is she really like in person? Here’s a bit of a weird bio.. I’ll try to add a little bio each time I remember!:

  • I have to say that I am pretty goofy.
  • I’m afraid to tell you that I can be a bit cranky or fussy when I’m tired but who isn’t, right?
  • I read a LOT! I should list the books I’m currently reading or at least, the books I’ve read that I think are good. I get most of my books through Amazon and read them on my Kindle app on my cellphone. Did you know that they have a boat load of free books? Just use the filter to look at the LOWEST cost books first. (you’re welcome for that tip!).. Thank you Thomas K., my Scottish friend! *wink*
  • I’ll only eat spinach in a salad. I love it raw/uncooked!
  • I’ve never been to college but I’ve been to a trade school. (Travel Academy)
  • Daisies are my favorite flowers. There’s something about them with their simple, innocent look.
  • I love my wheelchair and it’s driver (aka: my husband)
  • I believe in training a dog with the reward system versus punishment system.
  • To motivate myself in getting things done that I really DON’T want to do is by rewards (no I’m not a dog! *wink*). Those rewards can be ice cream, ice cream, and maybe some more ice cream.. but if I’m out of the ice cream (watch out!) then I’ll take whatever it takes to make me smile and moving with a pep in my step.

 

Now finally, here’s the part you are waiting for… Ready? My health update… YAY!!!: I did some lab work last week because my Endocrinologist asked me to. Instead of my TSH (thyroid stimulating hormone) being too low, it’s flipped out and gone the other way. Needless to say, since I switched back to Tracleer (bosentan) from Opsumit (macitentan) and started taking Methimazole, it has worked especially well. Unfortunately, it worked too well and I have had to cut back on the Methimazole two weeks ago. I’m thinking that I’ll be off the medicine all together after my next Endocrine appointment at the end of this month. The weird thing is… I asked my Pulmonary Hypertension doctor if they have heard of any other PH patients on Opsumit having the same TSH problems. She said no. That’s why they keep telling me that they think it’s my Cordarone (Amiodarone). Though, Amiodarone, is not a good medicine to be on, it’s the one medicine that I could tolerate when my heart started it’s arrhythmia problems back in 1993. I’ll be going to see my Cardiologist for an Echo and to discuss this more and maybe see what else is out there that can replace Amiodarone. I mean it’s been 20 years. Surely, something better and MUCH more expensive is available by now. Though, Tikosyn was recommended to me as my first option last April but I’m not too thrilled with it. I don’t have A-fib and I’m not ready to subject myself to a new medicine that I’m not at least 75% sure that it’s something that will do more good than harm. I’m just not one of those patients that blindly go where doctors lead me. I read up on everything they suggest.

Stay in touch because I love to hear from you. You can find me on Facebook, Instagram or email: goredrider@gmail.com *HUGS* to you all!