I can’t believe it… but I should have..

Living On Oxygen for Life

I use a splitter to connect an oxygen concentrator and a 100 lb liquid oxygen reservoir together to provide me with 6 LPM of oxygen to conserve my liquid oxygen. I have my refill days for my liquid oxygen on Wednesdays. So, on the 3rd of June I had my tanks refilled. For some reason, since then, I had been feeling sluggish, tired, worn down more than usual. I thought maybe Mary, my cat, may have chewed kitty holes in my tubing again. So, I checked my tubing multiple times and there were no holes. Then I checked the green Christmas tree that connects my tubing to the reservoir tank to see if it was screwed on tightly… it was. Figures, right? I mean, it couldn’t have been THAT easy!

Now, I know it’s been raining like a monsoon here in Texas and it has taken its toll on my breathing but it has stopped raining.. *YAY!* and that couldn’t be the reason since I’ve been staying indoor as much as I’ve needed to be. Was my breathing getting worse? I was really worrying and so was K. I was using my inhaler, taking my diuretics as prescribed but I still felt puffy and so short of breath. It just wasn’t normal for me. I certainly didn’t want to call my PH doctor.

As my last ditch effort, and almost by fluke of chance while I was filling my portable with liquid oxygen to go to a doctor appointment, I decided to switch the reservoirs (I have two 100 lb tanks) to join with my concentrator. What could hurt, right? When I pulled my tubing off my reservoir to switch them around, I noticed something weird. The one I was about to switch out wasn’t putting out oxygen even though it was almost full. So what that means was that I was only using half of the oxygen I needed for 3 days. Once I connected the other reservoir to the concentrator, I started to breathe much better and now I feel like myself again. I understand now why my sleep, short of breath, and energy level was so bad.

From now on, I’m going to start checking the flow from both tanks when I get my reservoirs refilled. Equipment can fail and I will be reporting this come Monday so that I can get a replacement.

In other news, I’ve been crocheting like crazy! I have a box nearly ready to send out to a preteen girl who is awaiting a double lung transplant. I’m including a secret gift that I can’t tell you what it is until after she receives it. I don’t want to spoil the surprise. I have another box about to be sent out to Michelle & then one to Sara. After that, I’ll be trying to finish up my daisy afghan to go to the next recipient, Vincent. I couldn’t do this without the generous donations going to my GoFundMe.com/helpneedahug. Read how you can receive a Need a Hug afghan if you have breathing problems and need a hug.

I hope you are having a great weekend!!! *hugs*

Congratulations to the newest recipient…

Living On O2 for Life

I wish to thank everyone who have generously donated to the Need a Hug project that I love doing. It’s where I crochet afghans/lapghans for those who have breathing problems. I’m posting today to let the newest recipient know that, all he needs to do is email me his mailing address, so that I may send him an afghan! YAY Tom Witterbottom! Email me at goredrider@gmail.com

If you have breathing problems and need a hug… email me your name, mailing address and why you have breathing problems. Those of us who have breathing difficulties understand first hand how we can have off days and just need a hug to get us through the day.

Need a Hug is funded by wonderfully generous donations from people who really care about what you are going through. It doesn’t cost you a thing.

Please spread the word about Need a Hug so that I keep it going and make many people happy by wrapping them in an afghan hug.

I will be posting soon about living on oxygen again. Love to you all!

Life After the Tyvaso Trial Run…

Living On Oxygen for Life

Many of you know that I had tried Tyvaso. It’s an inhaled medication that I had every intention of trying for a good 3 months to see if it would help improve my shortness of breath (SOB) and low energy level. I was skeptically optimistic about this medication only because of two reasons:

    This medicine has to be enhaled 4 times a day.
    Each medication the PH doctors have tried me on with the thought that it would “improve my SOB,” it didn’t.

Yet, I still had hope but I only lasted one week on Tyvaso. I read that others are taking this medicine. So, what’s going on with my body that makes me not able to tolerate this stuff? I don’t just have Pulmonary Hypertension and Heart problems. There’s the complication of Scoliosis as well.

Now that I’m off Tyvaso, I’m back to my living life happily. Yes, I still have shortness of breath and I tire easily. I started feeling better within 24 hours of stopping Tyvaso. Within, 48 hours, I was back to smiling and planning the drop-off of my crocheted afghan donations. Honestly, within the week of taking Tyvaso, I had nearly given up hope that I would be able to volunteer. So, here I am. Happy again and feeling full of life! YEA ME!