Life is amazing!

Living On Oxygen for Life

For most of us who have respiratory problems, the Winter months can be tough to get through. I try to stay home as much as possible so that I’m not exposed to people who are sick. I know… I wish they would stay home too. Because I stay home, I get cabin fever. Seeing it overcast outside and cold, really makes me feel blue.

By the time January rolls around, I’m getting excited because I know the next month I’ll be planting my garden beds. Hooray! So, I get out the graph paper and plot out where and in which bed I want my seeds. We also decide what our newest “experiment” crop (K likes to call them crops now. He’s slowing getting into being a farmer. *wink*) will be. This year I let K decide. He chose something that I have wanted to try since last year. Corn!! How exciting, right?!?

Now we don’t have a lot of “farming” space for corn. So we are only planting one row of 6 or 7 plants in the actual ground (not a raised bed). We also decided we need more strawberries and more of a variety of tomatoes. K got pretty handy and found our old window planter boxes for the strawberries and I had an idea to mount them on the side of the garden beds. Nifty!

2018 Spring Garden

I love getting creative! We have hanging baskets of cherry tomatoes too. Hopefully they will be successful. I don’t have a lot of energy to take care of all of this but K has really taken the lead on the watering the garden so that I can enjoy watching all the vegetables grow. There’s just something rewarding about watching & caring for the things you plant to grow into the vegetables you later eat. This excitement helps motivate me. The joy and motivation I get from my garden is the main reason K is onboard with helping me with it. He does what he can to keep me moving and exercising my lungs. Not to mention all the yummy vegetables we’ll get to eat!

So are you ready for some warm weather??? Lots of love to you all!!

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Random Picture Day #12 – The Oasis

Living on Oxygen for Life

Here it is as promised! My little oasis. I really love it. It’s not fully decorated yet but the lights, fan, and mostly all of the furniture are on it. The furniture was a gift from my mother-in-law! Totally awesome of her. I think she understood what K was trying to do for me. We’ve had several neighbors stop by at night asking about our patio and its lights… even a car driving by slowed down and K could them say, “Oh my gosh.. would you like at that?” K was up on a latter hanging lights at the time.

Maybe you are wondering how this patio can help me. It’s an encouragement for me to get out of the house. It motivates me to keep taking care of my plants. K and I have a deal where I am the only one who water my plants. He bought me a Pocket Hose which is lighter than watering with a normal, heavy, hose or a watering can. Before you say it… I’ve yet to have trouble with the Pocket Hose since I don’t turn the water on full force and I also drain the water out of it when I’m done with it. By getting out there to tend to my plants, I get a little exercise as well as a sense of accomplishment of seeing my plants, trees and fruit grow. I can’t tell you what that does for me.

We just hung the party lights!

We just hung the party lights!

I don’t know if you can see it but there is a ceiling fan hanging. It’s turned on by remote. The ceiling fan was a must because K didn’t want me to get overly hot outside. The pergola has a Polygal covering which not only keeps the rain off the patio but it shields some of the harsh sun rays off.

My plants

My plants

Can you see my dwarf lemon and lime trees? Not shown in this picture are my apple tree, herb plants and my jalapeños. This gardening thing is fun but can sometime be frustrating since there are these little things call Avids. Grrr! I want to grow Spinach next!

And finally a picture of ME! This picture is of me on the day K and I took my mom back to the train station for her train ride home. I was thinking… “Awh ma…. do you really have to go home?” *wink* We had a great time watching lots of movies!

oh mom

Take care of yourself! Let me know if you have any questions about me for a blog post or for the Q&A page! I hope you got your flu shot already! *hugs* to you all!! Happy Halloween!

Doctor appointment & medicine update!

Living On Oxygen for Life

I’ve been keeping myself busy with my fun garden which I’m growing in pots near the back door of my house. I’ve added more herbs and I’ve attempted strawberries but I think only one strawberry plant has survived. My raspberries tastes awesome! I’ve not given up hope yet! The day is so beautiful outside. So, my windows and back door are open until it starts heating up to the point I can no longer stand the heat. I’m sure it won’t be long. After all, I live in Texas. But all that aside, I wanted to tell you that yesterday I went to a new doctor. He’s a cardiac electrophysiologist. I sure hope I got his title right! His title takes up the whole left side of his doctor coat with the MD and PhD added to it.

The big reason I chose to go to this new doctor was because of the current cardiac medicine that I’m taking and have been taking for the past 20+ years. It’s called Cordarone (or amiodarone HCl). This medicine is used specifically for ventricular arrhythmias. It also has a pretty bad side effect of possible Pulmonary Fibrosis. I have been very lucky to not have developed this so far… but my ability to breathe has been getting worse over the years and really, I don’t want to be taking a medicine that could potentially be harming my lungs. That is why I went to see this doctor. I wanted to know if there were any new medications out that I could take for my arrhythmia problem.

Luckily for me, there is a new medicine out and of course, wouldn’t you know it… it’s a “Specialty” drug called Tikosyn. Not only that, to be able to start taking this medicine, I will have to stop taking my Cordarone for two weeks and then be admitted to the hospital for three days. It’s the only way the doctors allow patients to start this medicine. It’s because the patient has to be connected to an EKG to be monitored to determine the correct dose and to make sure the person’s body will tolerate the medication. The patient information packet that I was sent home with to study was geared towards people who are diagnosed with Atrial Fibrillation/Atrial Flutter (AF/AFL). That confused me because I have what I’ve been told is called Ventricular Tachycardia. Once I figured out that Tikosyn is a general purpose Arrhythmias drug, it only made me feel a tiny bit more comfortable with the possibility of this drug. It’s all a little scary to me. I haven’t decided on if I will do it but I’m leaning towards it. K is letting me decide this but I think we are both playing this off as a possible mini-vacation for him. LOL! Don’t get me wrong! He will be worried about me. He’s a great man.

Right now, I’m trying not to think about it other than for this post on my blog. I just thought you’d like to know what’s going on. I’m also still on the new PH medication called Opsumit (macitentan). I am doing a lot better on this go around. I had taken this medicine for the first time only for a week when I must have developed a sinus infection and had to stop the medicine for a whole week. I’m now restarted on Opsumit and am on the 5th day with no serious sinus problems and only a twinge of a bad headache occasionally. I think I will be okay on this stuff. If it helps my aorta artery and my breathing ability, then it will be worth it. Plus, there is the bonus of only needing to get lab work done once every three months now. That rocks!

I’m so looking forward to heading to Oklahoma to see my family. That means if I decide to try Tikosyn, it won’t be until sometime in June, after having all the fun I can have with my family. Besides, I don’t want to be off Cordarone while away from home and away from my doctors. To me, that’s risking a little too much. I’ll play it safe!

Don’t forget to follow my blog so you won’t miss anything! I haven’t forgotten the “Need a Hug” giveaway! I’m making the afghan and it will be finished very soon! I will get a preview picture up soon. Here are the pictures I took of my garden this morning. What do you think?

Herb garden in a pot with: chives, lemon thyme, spearmint, lemon balm & peppermint.

Herb garden in a pot with: chives, lemon thyme, spearmint, lemon balm & peppermint.

Newest herbs in my 5-in-1 dwarf apple tree pot: basil, cilantro, & dill.

Newest herbs in my 5-in-1 dwarf apple tree pot: basil, cilantro, & dill.

Tomato plant and jalapeño plant (can't wait to make salsa!)

Tomato plant and jalapeño plant (can’t wait to make salsa!)