When you least expect it…

Living On Oxygen for Life

Sometimes life throws us a curve ball and how we react to that can really show us how much of a team we are. We’re not just married and love each other; we are all-in through thick and thin with all the rollercoasters and good times that make up our life.

Throughout this year, K has been telling me that he really, really needs a vacation on a beach. He’s experienced an emergency visit to an ER clinic for himself at which time I had to bail on him because I developed a MASSIVE migraine while waiting in the patient room with him. Thank goodness his sister came to our rescue so that I could go home leaving him there alone until she got there. (I felt so guilty!) He’s had to deal with working in 100+ degrees heat over the summer. There’s also been my up and down health with the fact that I could no longer do the chores around the house that I used to do, which meant that K had to do them. That’s not all of it but you get the gist, right? So, yeah, he really needed a beach vacation.

I told K that, with the way our budget looked, we were going to have to get creative about being able to afford going on vacation. I knew he really needed it but I was concerned, not only for the financial aspect, but also I wasn’t sure if I could make the 10-hour drive this year. I didn’t want to say no. He works so hard and does so much for me. Thus, came his idea. Out of the blue he said that he wants my help in selling all his McFarlane action figures on eBay and that’s what we did.

We got incredible lucky with a German buyer who bought 5 really large boxes filled with K’s action figures, earning enough money to pay for the hotel in South Padre Island. We actually earned quite a bit of money! So, everything was looking good for our vacation plans. That is until K mentioned a little problem a week and a half before we were to leave.

K had noticed some floaters in his GOOD eye and he knew that he was suppose to call the Optometrist right away. They got him in the next morning. A few hours later, I got a phone call from K while he was in the doctor’s office, asking me if I had already taken my diuretic. *cue the drama music* Luckily, I was still in bed because it was only 10am. (Hey… I sleep in! Don’t hate me because I can! *wink*) He wanted me to get up *UGH*, get dressed and he was on the way home to pick me up because he needed eye surgery within a few hours. *Wait..what????*

I was freaking out. I was worried about K having to go through surgery again, having enough energy to be in the waiting room, having to run all the prescription pickups, taking care of K after surgery and then of course paying the copay bill of the surgery, the doctor and the anesthesiologist. What worried us the most was the amount of time K was going to have to take off work. Sick leave and vacation pay only covered most of it but it’s the few days that was unpaid that worried us.

We are NOT rich but we just sold a huge amount of K’s action figures and we had that money but that means we had to cancel our anniversary/my birthday vacation that I just reserved. That hurt… In fact, I cried.

But looking back at this whole situation, this whole thing felt like everything aligned just for this moment. Somebody up there was looking out for us. We’re not out of the woods yet but this shows us how well and how much of a team we are.

Not only K and I are a team but also K’s sister and my sisters too. My older sister came down and cooked 2 quiches and a huge pan of lasagna so that I didn’t have to cook. My sisters and mother kept texting me encouraging support to me, which helped a lot. I’ll try to blog more often. You can catch me on my Living on O2 for Life Facebook page or ChristineLovesDaisies Instagram if you have those apps.

So, this is why I’ve been mostly quiet. I don’t like posting things that seem negative or stressful but I wanted to let you know that we’re ok and alive. =o) Lots of love to you all! *hugs* FYI: if you start seeing a lot of floaters in your eyes, that could be from tears in or a detached retina. Get it checked out ASAP (within a few days!)

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My adventure today…

Living On Oxygen for Life

This was my adventure today. I made cinnamon swirl bread because K asked me to try to make it. It came out a little muffin-topped but when it cooled down a bit I cut a slice off and ate it warm with butter. It’s delicious even though I forgot to add salt. Oops! I read that it makes great French toast. Uh, who doesn’t like French toast???

From start to finish, this bread took me 3 hours to make. While I waited for the rise time to finish, I rinsed the dishes I used and ran a load of laundry through the washing machine. I’m still getting use to our new high-efficiency washing machine that looks like it barely uses enough water to dampen the clothes and has no real clothes agitator. Is it just me or do you wonder how or if the clothing even gets clean? It boggles my mind.

It’s definitely quiet time now at 5:30 pm and I’m ready for a power nap. So, I’m going to strap on my bipap machine with my oxygen and lie down to recharge enough to make dinner in about an hour or so. It feels like it’s been a long day.

I hope everyone has had a good day so far!

Life is amazing!

Living On Oxygen for Life

For most of us who have respiratory problems, the Winter months can be tough to get through. I try to stay home as much as possible so that I’m not exposed to people who are sick. I know… I wish they would stay home too. Because I stay home, I get cabin fever. Seeing it overcast outside and cold, really makes me feel blue.

By the time January rolls around, I’m getting excited because I know the next month I’ll be planting my garden beds. Hooray! So, I get out the graph paper and plot out where and in which bed I want my seeds. We also decide what our newest “experiment” crop (K likes to call them crops now. He’s slowing getting into being a farmer. *wink*) will be. This year I let K decide. He chose something that I have wanted to try since last year. Corn!! How exciting, right?!?

Now we don’t have a lot of “farming” space for corn. So we are only planting one row of 6 or 7 plants in the actual ground (not a raised bed). We also decided we need more strawberries and more of a variety of tomatoes. K got pretty handy and found our old window planter boxes for the strawberries and I had an idea to mount them on the side of the garden beds. Nifty!

2018 Spring Garden

I love getting creative! We have hanging baskets of cherry tomatoes too. Hopefully they will be successful. I don’t have a lot of energy to take care of all of this but K has really taken the lead on the watering the garden so that I can enjoy watching all the vegetables grow. There’s just something rewarding about watching & caring for the things you plant to grow into the vegetables you later eat. This excitement helps motivate me. The joy and motivation I get from my garden is the main reason K is onboard with helping me with it. He does what he can to keep me moving and exercising my lungs. Not to mention all the yummy vegetables we’ll get to eat!

So are you ready for some warm weather??? Lots of love to you all!!

The Weekend with Company

Living On Oxygen for Life

I had my older sister and her family in town for a visit this last weekend and had a great time. However, I could tell almost right away that my health has drastically changed since the last time they visited. It was a real eye-opener for me and quite discouraging too.

Thankfully, I was already in the habit of preparing in advance a meal or two to be able to pull out of the fridge or freezer and heat up. Mostly, these were for dinner. I have found this to be extremely time and energy efficient for me. Well, really, for everyone. My sister now knows that I can’t help her much in the kitchen and still have energy to talk with her. I get pretty short of breath. So, after dinner, she would have me go sit down and she would take over to clean the whole kitchen.

One thing I’ve learned about both of my sisters is that when they do something at my house for me, it’s because they want to. Mainly because they don’t want me to wear myself out just because they are there to visit and because they actually WANT to do it.

It’s just like my older sister to bring me her special Christmas cookies as part of my Christmas gift from her. Before I was even able to get one, everyone started eating them. I was like… Heeeyyyy… *pout* They are that good. I was willing to share but gee wiz. So, she went to the store to buy all the ingredients that I didn’t already have to make another batch for me. Yay!!! As she’s whipping up another batch of sugar cookie dough, I was amazed at how easy it was for her and she wasn’t even tired! I had to go sit down after a little bit of watching, help with cleaning, and holding the cookie pans so that my niece and sister could place the cookies on each pan. I helped Frost some too but my niece did all of the Sprinkles artwork!

Christmas cookies

After they left for home, I was so tired but I had stuff to do Monday and we ended up having to take Rocco to the vet on Tuesday because he tweaked his back and we wanted to make sure he hadn’t damaged anything. He’s going to be ok. No jumping for a while.

So, today is recovery day. I’m resting all of today. I already told K not to even ask me to do anything or go anywhere because I just needed one whole day of quiet rest. I’m going to post the recipe of one of the dinners I premade for my sister’s visit in case you want to try it. It will be under the In the Kitchen link of my blog’s menu. Beef Tips is what I made and my sister asked for the recipe. I’ll try to get my enchiladas recipe on here too but I’ll do that in a few days. Take care everyone.

The Beast Within… (repost)

Living On Oxygen for Life – a repost from 2016 because this is so important to read if you are dealing with anxiety and control issues.

Over the past 10 years or so, this beast inside me has grown and mirrored the decline of my health. It all started with what I thought was constant worrying. You know… when you have to time how much your oxygen will last? Well, that can make you worry about checking your oxygen tank a LOT when you are out having fun. Then I would worry about how long my energy will last while I was out having fun. Can I walk that far in the mall or in the hospital for doctor appointments? Will K get upset if I need to stop to sit down for a few minutes. I know the last one is kind of an irrational worry. Of course K wouldn’t get upset but he did try to push me to walk a little further before stopping which only made me feel like he wasn’t taking my need to stop seriously. My health wasn’t as progressed as it is now. So, pushing me a little bit further was a good thing that K was doing. It’s just when I was tired and felt like I needed a break, no knows how I felt except me.

I turned all this worrying about so many things in my life into trying to control everything around me. I felt like I needed to manage everything so that I had enough energy for things that I had to do around the house and the things that I wanted to do with K. I wanted to know where we were going when we were out of the house, what route we were going, and even how K drove. I needed advanced warning when K wanted us to go out to have fun so that I can be sure to rest up during the day. But all that wasn’t working. Trying to control everything turned into Anxiety because there is no way that I could control everything, be happy and not irritate those around me.

It’s taking a long time to learn to let go of the control issues. K reminds me by saying that he “Gets it.” and “I will always take care of you. I always have your best interest as my priority.” It has helped me a lot with him saying this to me. I have to remind myself of what he said over and over because my memory doesn’t retain information as well as it use to. So, when I get into my vehicle with K, I will remind myself that he has my six. *wink* Giving up the control and learning to trust is a very hard thing to do for me because I feel as if I’m losing more of my independence. However, as long as we have fun in our lives, all will be ok.

The Hair Dryer’s other danger…

Living On Oxygen for Life

I had a thought the other day about hair dryers. You know the ones that are handheld. Not the one’s that my mom use to sit under with curlers in her hair. I can still see her in my head sitting there with her rollers in waiting for her hair to dry. Wow.. She was a patient woman for beauty. She would while her time away painting her nails. She was skilled at that. Me? Not so much. *shrug*

My thought that I had was about a danger that I hadn’t thought of before. Mostly people know about the danger of not using or leaving a plugged in hair dryer near or in a bathtub of water. Yikes! Electric shock would ruin anyone’s day (or should I say life?). No, I was thinking about people who use oxygen while trying to dry their hair with that handheld hair dryer. It has a danger to it. Did you know?

Have you ever seen a hair dryer spark when you turn it on? I have. That in itself is dangerous because most people don’t clean the lint out of the vent of the hair dryer until it’s coated in the stuff. Now, we also need to remember about the heating element of the hair dryer. It glows red when you have the dryer on warm or hot, right?

Imagine yourself and how you use your hair dryer. Is it close to your face as you dry the underneath parts of your hair? Are you wearing your oxygen while drying your hair? I have to use my oxygen all the time. The thing is… I don’t dry my hair using a hair dryer but once in a blue moon (mostly in the Winter when I don’t want wet hair if I have to go outside). So, naturally, I didn’t really think of the danger that could happen if you mix a spark from a hair dryer and the oxygen that I or you use. In fact, at the website: Consumer Product Safety Commission, near the bottom of the page, it says not to operate a hair dryer where oxygen is being administered.

As for me, I air dry my hair. Using a hair dryer to dry my thick, long hair takes forever and makes me tired. Plus, I don’t like how it treats my hair. I end up looking like a fluff ball most of the time. Now that I have had this thought about the danger of using hair dryers with oxygen in use, I’m very cautious. I’ll admit that I still use one on RARE occasion but I know I shouldn’t. I hold the dryer as far from my hair as possible just to add an element of a buffer zone. I clean out the lint too. I make sure it’s in good working condition. I certainly don’t want a fire on my head!

Now, I’m not saying that you should use a hair dryer but if you still want to, I can’t stop you. Do it with extreme caution. Keep your hair dryer in peak condition and away from your oxygen. If it sparks, you’re gonna have problems.

2017 A Year’s Review…

Living On O2 for Life

Life during 2017 sure has been interesting. K and I have found ourselves confronted with many challenges that mostly were unexpected, which usually is the case for us. However, there were a LOT of good, fun, adventurous times throughout the year for us too. Thank goodness… because we really needed them.

January 2017 started with a visit from BOTH of my sisters at the same time! It was shockingly fabulous because it’s difficult for the both of them to have the same time off with their work schedule and then they’d have to drive down to see me now. I don’t travel well anymore and they are starting to understand that a little better now. It’s one thing for them to know their sister’s health is declining but it’s another thing to actually see it first hand. January brought the gift that I’d been waiting for… Christmas cookies made by my older sister and frosted by me and my sister and decorated (little kid style) by my very adorable niece.

February 2017 brought all kinds of exciting fun planning of my vegetable garden. We tried growing new things this year, like broccoli, squash, and tomatoes. I tried to keep up with the garden but with my health and the Texas heat, it started to get me way too tired just trying to keep it watered. A couple of times, K would tell me to just go inside because he would see me struggling with my breathing. So, he took over the garden for me. He’s my hero!

If you haven’t ever grown your own vegetables, it’s a sight to see and it’s actually very therapeutic. No, really… I swear! In March, the potatoes and our two tomato plants were growing like crazy due to amount of rain we’d keep having! Yay!!

In March, K and I were shopping in Home Depot and my liquid oxygen tank flew out of the cart and landed on the cement. What a scene that was! K was so worried about me but I handled it amazingly well after I realized it still put out oxygen. Whew, right? By the end of March, I was harvesting my first strawberries! Yummy! In fact, K was so interested in my strawberries that he filled two hanging baskets with strawberry plants to grow some of his own. Wow. I’m slowly turning him into a farmer! haha!

In April, K’s Aunts and Uncles came down to visit but stayed with his mom and his aunt here in town. By May, I had a lot of tomatoes I didn’t know what to do with them. I mean, we could only eat so many slices of tomatoes on sandwiches and for salads. So, I looked up on Pinterest how to make homemade tomato sauce. The process was tedious and it felt like it took forever but it sure was a success. I even had to call my mom for advice.

I didn’t get to go to my niece’s recital or birthday party because I can’t drive myself that far alone anymore. It just wears me out being the driver for that long. In between the missed trip to my sister, to the time I got to go see them later in the year, K and I went to 2 concerts. We saw U2 and then we saw Roger Waters (think Pink Floyd). Those concerts were a gift from me to K for his birthday and Christmas of last year. We used my wheelchair and I a bought a cup holder that I could attach to the arm of my wheelchair from Amazon. It was SO handy.. so convenient and affordable! Yay.. we all love affordable, right? Going to the concerts with K reminded me of the old days of dating K. We had a good time dancing, singing and acting goofy back then as we did for these two concerts.

In August, my older sister road the train to my city and drove me in my van to her house. I stayed with her for 10 days and then she drove me home and caught the train home. How sweet was that??? I know, right? I have to admit that I missed K something fierce. After I got home and rested up, K and I went on an adventure to South Padre Island for our 25th anniversary. We hit every art gallery and tried various restaurants and did all kinds of fun things. It was a great 10 days but on the way home, the front grill of my van flew off and went over the top of the van. I’m just thankful that it wasn’t me driving because it sure was scary. We didn’t see where it landed and thankfully no one was behind us. I knew we should have taken Klondike, my rubber chicken (road trip mascot). We got an estimate to replace the grill but it was an outrageous price. K and I had an idea but we didn’t realize that we were both thinking the same thing until we started talking about Plan B. We’d the grill replacement part on Amazon, order it, and K thought he could put it on the van himself. So that’s what we did for so much less! I’m so impressed with K’s skills! Though, he’s not much of a car guy but he can fix simple things. My MacGyver, he was! *wink*

From October up to now has been rough, K has had a lot of trouble with his eyes that scared the ever-lovin’ bejeebers out of us. He’s had to have 2 surgeries and I needed to take care of him while he recovered. It reminded me of just how much he actually does for me with my health needs and all done willingly and without complaint. I’m so lucky. I have to mention that he’s got some great ophthalmologists. One of them has the most awesome waiting room filled with jigsaw puzzles that anyone can work on and even a blanket rack that has CROCHETED afghans! *shock* Wow! K said his doctor wanted to meet me. Apparently, K had been telling him about me and the doctor has a daughter with scoliosis like me. So, without giving names, I’d like to give a shoutout to her! “HEY! If you are reading this, here’s a big hello to you and hoping that you are doing well.” *hugs*

Christmas was great! I got to help K decorate the house with new creative ideas this year. We try to add new ideas every year to the decorations! This year we added 5 wreaths we decorated together, 3 hung in our family room windows and one for two large mirrors we have. I had to go at a really slow pace hanging Christmas bulbs, wrapping ribbon around trees, and creating my 3 wreath masterpieces but we got it all done in about 5 days. Hooray! And now it’s January 2018. We’re ready for a better year. *fingers crossed* We’re already planning some exciting things to look forward to which is how we stay optimistic during the tough times.

You can see the pictures I take if you look in the right column of this blog under the Instagram heading. You don’t need to have an account to see my pictures. I just didn’t add them to this post because it’s already so long.