I wasn’t ready for a change…

Living On Oxygen for Life

For those of you who read my blog and use oxygen, have any kind of breathing problem or any kind breathing device, you know life can be challenging. Life is filled with highs and lows. When you get in those high places, it feels like you are accomplishing the things you want to do in life. Unfortunately, those high places don’t always last as long as we want them to last. At least, that is how it seems to me. Sometimes the lows can be pretty low and lasts for what seems like a lot longer than I’d prefer.

Switching over to Tikosyn from Cordarone involved a lifestyle change for me. It’s been a crushing blow to my happiness. Instead of one step back in health, it feels more like two steps back. It made me really frustrated, thinking and wondering what I did wrong. It’s made me have to, once again, reinvent ways of getting things done around the house. Some of the things, K has completely taken over which adds more stress for him. Both of us were hit hard with this unexpected change in my ability level. I get short of breath from scooping a cat box (which he now does) or using a broom on the floor.

K takes good care of me and I’m grateful for his love and understanding. He’s come a long way. *wink* He stopped thinking that I was just being lazy about ten years ago. He’s always known that I have breathing problems as well as the pulmonary hypertension on top of everything else. He just didn’t realize or understand how much & how quickly the Pulmonary Hypertension would progress over a relatively short amount of time.

So now, I’m going to take care of him. I’ve decided we’re going on a much needed vacation since we haven’t gone on one in 3 years. Right now all I can think of is how good the sand will feel under my feet with the water washing over them. This will involve a lot of planning for my oxygen needs but it’s always been so worth it. I’ve already secured our accommodations and I’ve even bought travel insurance just in case we have to cancel at the last minute or if one of us becomes sick while on vacation. It’s good to have a backup plan just in case there’s a hurricane too!

We both really need this getaway. We rarely watch TV while on vacation. We leave our worries behind while on vacation too. So it’s like we’re on an island made for us.. though, technically we’re not. This is our way to get back to a healthy mind and release all the stress even if it is for just a little while.

I just wanted to let you know that I’m getting into the swing of the new changes we’ve made. I’m back to blogging and YES Klondike will be going with us on our vacation. My sister sent him back to me! Yay! Stay tuned in for more blog posts from me! Stay well everyone! I enjoy talking with you on Facebook and by email! goredrider@gmail.com is my email address for those of you who have questions or would like to say Hi!


What it takes for us to travel…

loaded van

Living On O2 for Life

Going on vacation takes quite a bit of preparation for us. What you see is the inside of my van. For this particular vacation, it contains our luggage, beach chairs, an oxygen concentrator, 2 100lb liquid oxygen reservoirs full of oxygen, 1 75lb reservoir, an ice chest that you can’t see, a dehumidifier, my wheelchair, my bipap machine and other odd essentials like food for the road, laptop, cameras, travel itinerary, and other gadgets .

We try not to travel with this much oxygen anymore. It can be dangerous but we drive VERY carefully. It’s the other guy that we can not predict. So now, we keep it to a minimum of 1 100lb and 1 75lb reservoir. I’d rather get my oxygen refilled on the road if needed by my DME Lincare.

It’s all worth the effort. We LOVE going on vacation. Like I’ve said before, it gives us the opportunity to build memories that will stay with us always. These memories are special to us.

I just thought y’all would like to see how much goes with us when we hit the road. Plus, I can’t forget to mention that we take our beloved roadtrip mascot of a rubber chicken! *wink*

Follow my blog! I have something new coming up. It’s going to be called “Random pictures of my life on oxygen.” Or something like that. I will post a random picture of me during my life on oxygen. I want to show you that even though you need to use oxygen, life can be fun. I hope you like them. Some of the pictures are NOT glamorous. hehe!