Staying Active…

Living On Oxygen for Life

I AM SO EXCITED!!! K built me a second raised garden bed so that I can plant even MORE vegetables this year. He knows that my energy is waning but he is wanting me to keep active so that my lung function stays stable. Plus, staying active makes me happy even though it takes a lot more energy. So, this year, K has committed to helping me with my garden whereas, last year, he told me it would be my responsibility to take care of it.

Here’s some of my gardens:

I planted 8 seed potatoes this year.

Carrots, Broccoli, & Herb garden.

I know what he’s doing and I appreciate it very much. He’s getting more involved in hopes that I will be encouraged to keep moving which has declined over the last 6 months. In fact, we even went out clothes shopping for me last week. I normally hate shopping but I hadn’t had any substantial new clothes in years. I’m someone who will wear what I own for years before I become willing to shop for new stuff. Shopping makes me tired and again, K was so instrumental in helping me make shopping for clothes really fun. He helped me pick out clothes (because he’s SO good at! haha!), came in the dressing room and helped me get clothes on and off if I needed it, went out for exchanges for different sizes, told me to rest when he saw I was getting tired, AND told me, as I was showing off each piece of clothing, how much he liked it or asked me if I liked it or will I be comfortable in it. You see, I have scoliosis and clothes don’t always fit right. It can discourage me a lot when I go out clothes shopping. So having K there in the dressing room giving his opinion was SO helpful. He’s never gone into the dressing room with me before. So, yeah, he’s noticing and really trying to make a difference in my life and our happiness.

Today, I have February’s Need a Hug afghan being mailed out to a sweet lady, Linda. I’m still working on March’s afghan. It’s about half done. I hope I can finish it by the end of this month. I hope everyone is doing well. Much love to you all! *HUGS*

P.S. I just told K that I need a new Rubber Chicken. *sniff* Klondike’s (my current chicken) finally broke his neck *cringe*. It’s so sad because he’s been on some amazing adventures! When I get a new one, I will need help with naming him (or her). I’ve never had a girl rubber chicken before! Yes, I know I’m a bit strange about these chickens but they are our Road Trip Mascots. They go on our vacations with us for good luck. *sigh* So far, over the last 29 years, we’ve had Poke, Poke Jr., Mr. Chicken, & Klondike as our mascots. It really is a fun thing to do. haha! Like I’ve always said, finding something fun to distract me from my health, no matter how silly it can seem, is how I deal with life.

Life isn’t easy… is it?

Living On Oxygen for Life

November 2016

November 2016

Throughout November and December, life was difficult because I was so depressed even though my sisters came for a visit on New Year’s Day. I finally got off of Tikosyn and back on Cordarone. I had to buy it from Turkey because the U.S. doesn’t produce brand name anymore. Don’t worry… I had the approval of my cardiologist, that I’ve seen for about 25 years, to take the Turkey Cordarone. So he knows me pretty well. Now that I’m back on Cordarone, I’ve started feeling more myself, as in my heart has settled down. However, I went through a month of feeling as if I had no motivation and all the Christmas stress was getting me depressed. K was noticing. It was definitely a struggle there for a while. I even stopped crocheting for about a week and a half. *SHOCK!* Whaaaat??? Say it isn’t so! I know, I’m surprised about it too. But don’t worry. I’m back at it and I finished the December Need a Hug afghan and have started January’s afghan! Yay! I still need to get the December afghan in the mail. Ergg… Sorry!

Because my breathing has been worse, I exchanged my 5 liter oxygen concentrator for a 10 liter concentrator that I use with my liquid oxygen. I still use a splitter that I can connect the two (concentrator with the liquid oxygen) to use together to make my liquid oxygen last longer. There’s another reason for upgrading to a 10 liter concentrator. I need a machine that will give me more oxygen for when I need it in the future. Plus, it will make vacations a lot easier because we will only have to travel with one 100lb liquid oxygen reservoir and one 75lb reservoir as well as the 10 liter concentrator. I’m thinking ahead for my future. You may be wondering why I still use my concentrator with the liquid oxygen bled in together. Well, the oxygen concentrator does not put out 100% pure oxygen like the liquid oxygen does. My lungs are very sensitive and they just need a higher concentrated level of oxygen. Plus, using 6L of oxygen from both 100lb reservoirs using the splitter (each on 3 liters) doesn’t last me a whole week. My O2 guy only comes once a week for a refill. I tried just the oxygen concentrator at 6LPM but everyday I slowly started feeling worn out. It’s as if I’d use liquid oxygen on 5L… I could do it but by the end of the day my body would feel weak and my breathing would be much more difficult. Here’s a picture of my splitter.

O2 spltter

O2 spltter

But now for the good news… K and I are planning to go to two concerts!! U2 and Roger Waters! K has been waiting for what seems like forever for U2 to announce a concert date in our area. The really neat thing that’s kicked me out of depression is that K has finally decided to help me do a MAJOR Spring cleaning. It’s not the type of Spring cleaning that you may be thinking of, but it’s more of the kind where you take all the stuff out of every closet and my craft room. We are sifting through all of it and deciding what to throw away, what to donate and what to shred. I have TONS of paper work to shred. We had to get an extra paper shredder so that K could help. The one I already have is slower and shreds less paper at a time. K is parting with his McFarlane action figures and he has a LOT of NHL series 1 thru 12 plus variants. (We are looking for a place to sell them. Most likely below cost.) We’re talking boxes and boxes of dolls. Oops! Did I just say dolls? I mean action figures. *wink* It’s good to get the house uncluttered. It makes me feel like I’m accomplishing something. I work on it everyday and even though it makes me feel exhausted, I don’t want to stop until my house is just the way I want it. Finally!

I plan on blogging more often. So keep coming back! Thanks for reading and stay well. *hugs*

Problem? Fix it!

Living On Oxygen for Life

Stress..the final frontier..for which no man (or woman!) wants to experience. Did that even make sense because I can’t tell.. I’m too stressed out. Over the last three weeks, I have literally hit the maximum overload point in the amount of stress my little body can handle before I start feeling physically sick. Chest pain, heart beat skipping, and downright depression hit pretty hard. But, let’s not go there.

I played phone tag a lot last week trying to find out when my doctor can schedule me in his itinerary for trying Tikosyn. He finally got back in town last week. I called him last Monday to let them know… “Hey, I’m still here waiting on an answer..” I had to leave a message. I really hate phone tag. So I sent an email too. You know, just in case. I finally get a call back from the doctor’s staff saying they’ve been discussing my case and they think the doctor will have an opening to be available to the hospital for the 3-day stay requirement during the last week of April. I told her that I’ll be out of medicine soon and I’m already splitting the pills in half. Her answer was that I’d have to be off the medicine completely for 2 to 3 weeks anyway. Personally, I think we’re cutting it a little too close for my comfort. Between now and then, the doctor has other out of town conferences to attend. What will happen while I’m off Cordarone and I have a rhythm problem and he’s out of town??

Meanwhile, K and I have decided to track down and purchase Cordarone from Turkey so that I’ll have something to fall back on if my body can’t tolerate Tikosyn. It hasn’t arrived yet but it’s been shipped. *fingers crossed * that it’s the same brand name Cordarone that I’m currently taking.

Right now, I’m not feeling any bad effects of being on just a half dose of Cordarone a day. My heart is skipping a little but I’m ok with that. As long as it doesn’t get worse or something doesn’t cause a lot of stress for me, we hope I’ll do ok.

I really wanted all this settled before the PH Conference in June because I’m super excited to be going with K. I’ll be hopefully giving away my favorite Need a Hug afghan that I just completed. It really is lovely!

This the Need a Hug afghan I wish to give away at the 2016 PH International Conference

This the Need a Hug afghan I wish to give away at the 2016 PH International Conference

Q & A video?

Living On Oxygen for Life

Most of you know that I’ve done YouTube videos about my Bipap or the “Meet Christine”, right? If you’d like for me to make another one, I’ll do a Q&A video if you send me your questions. They can be about me or about oxygen or just silly stuff. Keep them clean questions. Just message me or email your questions at goredrider@gmail.com when I get enough for a video, I’ll make one. Sound like fun?

I finally figured out what I wanted to do with the 3 large lemons my dwarf Meyer lemon tree produced. What’s better than freshly squeezed lemonade? It was so delicious! If only my tree grew more than 3 lemons!

I made lemonade from the lemons I grew!

I made lemonade from the lemons I grew!

Here’s the updated picture of my January’s Need a Hug afghan. Get yourself on the list of recipients if you feel in need of a hug because you’re having a tough time breathing.

January Need a Hug afghan Update

January Need a Hug afghan Update

GO Broncos!!! Need I say more? hehe!

Yes, I'm supporting Peyton Manning for the Super Bowl.

Yes, I’m supporting Peyton Manning for the Super Bowl.

I’ll be attempting more gardening this year. K is building me a raised garden bed that will be about 16″ high. The size of it will hopefully end up being 2’x 6′ and 16″ tall on the ground. I’ll be growing potatoes, Bibb lettuce, cilantro, and spinach this time. Also, the chives and basil are what I grow every year. I hope like crazy that I’m successful and that it doesn’t make me too tired. K is going to build this extra garden next to the tall raised bed. That way my oxygen tubing will reach just fine. He’s so thoughtful. He had to move all my half whiskey barrels to make room. Aww… he’s so sweet. He loves me but this is his way of trying to get me motivated and outside so that I don’t become sedentary which would make my lungs weaker. I don’t need them any weaker. Trust me on that. erg! I’ll take pictures of the garden progress and blog about it! It will be fun!

So send in your questions and I’ll try to answer them. Think of it as a way to get to know me and remember, no question is a dumb question. If I can answer it, I will. Just keep in mind that I’m not a doctor. My answers are based on my experience during my life. Have a great week!!!

An Overload of Information to Catch You Up!

Living On Oxygen for Life

Oh my goodness… I have so much to catch you up on. First, let me show you my MacGyver invention that I took to two movies and a trip to see my sisters a few days ago. It enabled me to take both of my portable liquid oxygen tanks and not have to carry them myself.

Going to a 2 hr and 15 min movie with 2 tanks and this cart I invented to carry both tanks.

Going to a 2 hr and 15 min movie with 2 tanks and this cart I invented to carry both tanks.

I put one of the portables in the bucket and strapped the whole thing in my van on the middle bench with the seatbelt. It worked really well! Next thing I need to tell you that my trial with Adempas is over. I didn’t do very well on it. I had a constant headache and my breathing had gotten worse. So, I talked with my doctor and she agreed to stop the medicine. Having Restrictive Lung Disease makes it hard to find Pulmonary Hypertension medicine that my body will tolerate. Right now, I’m back on 62.5mg of Tracleer twice a day.

Christmas was great!! K and I decorated the house again this year. Unfortunately he had to work on his days off but I had the energy to decorate most of the Christmas tree myself since I went slow. It took me a couple of days to get the ornaments on the tree. Here’s a couple of pictures of what we did.

Our 2015 Christmas Tree!

Our 2015 Christmas Tree!

K made our table look great with a live tree from Jackson & Perkins.

K made our table look great with a live tree from Jackson & Perkins.

I had fun crocheting some holly and berries... I turned them into knob ornaments.

I had fun crocheting some holly and berries… I turned them into knob ornaments.

My Mary enjoying the Christmas tree 2015.

My Mary enjoying the Christmas tree 2015.

 

 

 

 

 

 

 

 

 

 

 

 

When I was visiting my sisters a few days ago, we met up at Winstar Casino since it was the most central place to meet. My little sister is the one who went to Paris and she brought me back Klondike! It was good to get him back home but it looks like he is going to be a world traveler because my little sister said they will take him to Germany when they go. Germany!!! How cool is that? They really liked the Shutterfly book I made of all the pictures they took of Klondike in Paris. They texted them to me each day they were there. By doing this, it gave me a chance to travel by proxy to places that I’d never thought I could go. Overseas! Plus, I got a very awesome purse and a beret! Yippee!!

The French Beret I got from my sister!

The French Beret I got from my sister!

I know I’m overloading you with a bunch of information but I can’t stop now! I have more news to tell you! This one is super exciting because I worked all year to accomplish this one. My dwarf Meyer Lemon tree, that I’m growing in a half whiskey barrel, produced 3 whole lemons for the first time ever and it took all year to grow them. I think I’m going to make lemon brownies with a glaze on top. I forget what they are called but I found a yummy Pinterest recipe. The lemons are HUGE!

It took one year to grow these!

It took one year to grow these!

I’m still crocheting Need a Hug afghans. Even though 2015 was pretty rough and my Happy Jar doesn’t have a whole lot of “Happy Moments,” I’m determined to make 2016 a more awesomer year. Yes, I said AWESOMER which is a new word I invented and I’ll say it until it catches on! haha! Have a great year everyone and stay well and warm. Sorry I had to throw everything at you in one blog post. Believe me, I could go on but, I’ll let you digest this post for a bit before I post more. Lots of love and hugs to you all.

I’m moving my Need a Hug…

Living On Oxygen for Life

I just wanted to let you know that I’ve created a separate blog for the Need a Hug project that I do. I’m attempting to keep to create a home of its own to show you each afghan I create as I go along! I’ve uploaded every picture that I can find to that blog. If you have received on of my afghans and would like your picture on the Need a Hug blog, email me at goredrider@gmail.com

I’d love to show others how much people enjoy the afghans and lapghans that I send. Naturally, I don’t post any picture that I receive with your express permission. You know how I feel about privacy. So, take a look at my newest blog at Need a Hug Project. It’s REALLY new… so please follow if you’d like. *hugs* Thanks everyone! I also post on my GoFundMe page! Thank you so much for the generous donations I’ve received!!!

Love to you all!!!

I’ve had enough of July…

Living On Oxygen for Life

thehalfmoonJuly2015

Lately, I have become a bit lazy and now I’m paying for it. It’s not really a laziness by choice. It’s one of those laziness that creeps up on you because you haven’t felt well enough to be motivated to do much. It’s a struggle for me at times. Right now… I’m trying to deal with this malady as best as I can.

It’s gotten to the point where I stopped calling friends & family or leave the house much for anything besides doctor appointments and grocery shopping with K. That, in itself, is bad. I need to push myself to do things because I don’t feel the energy to do them. I’m talking about making dinner, processing laundry (i.e.: changing loads, folding or hanging up shirts), and swiffing the wood floors. All of this seems really easy to do, right? It looks easy to me. It’s just that when I have a monumental Migraine *knock on wood* everything comes to a standstill. K picks up the slack and keeps things going. Unfortunately, this time, I didn’t rebound as well as I normally do.

Maybe it’s the Texas heat or maybe my breathing is actually getting worse. In fact, K actually picked up the laundry basket full of clothes, as he was making himself a sandwich for lunch, and placed it on the counter. I wasn’t sure why he did that. So I asked him and he told me he did it so I wouldn’t have to bend over and pick it up. He knows how bending over affects my breathing now. Sure, he could’ve carried it all the way to the bedroom but he doesn’t want to make it THAT easy for me. I need to keep active or my health will decline.

I’ve started writing a TO-DO List to get me going again. So far, I’ve accomplished one thing on it which is tonight’s dinner. YAY! I have been crocheting a lot and I’m getting ready to send out another Need a Hug afghan. Just please give me a few more days to get myself back into the swing of things. I’ll be posting more often again. This month has been so weird. It’s definitely NOT normal for me to be so quiet. So, I’m sorry for that. I’ve had enough of July’s laziness and I’m ready to come out swinging in August! Watch out! haha! *HUGS* to you all!!!

The above picture is one that I took a few days ago. The moon was low enough in the sky to take a pretty good shot at it. I love taking pictures! It only took about 15 tries to get one this clear because I didn’t use a tripod. I didn’t want to lug it outside. haha! Space intrigues me! I loved the pictures of Pluto! That was AWESOME!

[2015]